Therapeutic Recreation Exam 1 Notes
Therapeutic Recreation Exam 1 Notes LYHS 3990
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Principles of Therapeutic Recreation I LYHS 399001 Instructor Michelle Rhoades Fall 2015 Book Introduction to Recreation Services for People With Disabilities 3rd Edition Authors C Bullock M Mahon C Killingsworth Activities or experiences freely chosen for the intrinsic bene t 0 Provision of recreation programs and services for all people Provision of recreation programs and services that are for people who require special accommodations because of unique needs they have owing to some physical cognitive or psychological disability Promote independent functioning and to enhance optimal health and wellbeing of people with illnesses and or disabling conditions HIPAA Health Insurance Portability and Accountability Act Addresses the security and privacy of health data De nes the coverage and limits restrictions Preventing Healthcare fraud Privacy Rules Security Rules Con dentiality Chapter 1 Who are people with Disabilities De nition of disability pg 2 lmpairment Any loss or abnormality of psychological physiological or anatomical structure or function which might result from disease accident genetic or environmental agents Disability Any restriction or lack of ability to perform an activity in the manner or the range considered normal for a human being Handicap a disadvantage for a given individual that limits or prevents the ful llment of a role that is normal Depending on age sex and social and cultural factors for the individual Disablement Umbrella term that includes 3 key dimensions 1 Body structures or functions 2 Personal activities 3 Participation in society GWDPPH People rst language Focus on individual people who are quotwithquot Power create positive images Communication recommendations pg 10 Talk directly to person Encourage selfexpression of opinions Use normal tone of voice Simple not childish Allow ample times to respond Don39t nish statements Disability and the Social System p917 HoweMurphy 6 systems Typical person The biological system A family system An agency system A neighborhood system A community system H H I who havequot Interrelationship Chapter 3 Conceptual Cornerstones of Service Delivery Person Centered People rst concept of enhancing quality of life for people with disabilities Quality of life Is foundational to the person centred approach Is rooted in the people Has increasingly receive attention by people with disabilities Table 31 pg 57 Principles of Quality of Life Quality of life for persons with disabilities is composed of those same factors and relationships that are important to all persons Quality of life is experienced when a person39s basic needs are met and when he or she has the same opportunities as everyone else to pursue and achieve goals and in the major life settings of home community school and work PPPPPH Quality of life is a multitude no concept that can be consequently validated by a wide range of persons representing a variety of viewpoints of consumers and their families advocates professional and providers Quality of life is a enhanced by empowering persons to participate in decisions that affect their lives Quality of life is enhanced by the acceptance and full and integration of persons and their local communities Quality of life is an organizing concept that can be used for a number of purposes including evaluation those core dimensions associated with a life of quality providing direction and reference in approaching customer services and assessing person39s feelings of satisfaction and wellbeing Normalization You act right with making available to persons with intellectual and other impairments or disabilities patterns of life and conditions of everyday living which are as close as possible to or indeed the same as the regular circumstances and ways of life of their communities lntent of normalization is NOT to transform people with disabilities into normal individualsquot Selfdetermination autonomous regarding meaningful life choices and it encompasses activities such as problem solving decision making go setting selfobservation and evaluation selfmanagement and reinforcement acquiring and internal focus of control experiencing positive attributions of ef ciency and outcome expectancy developing a realistic and positive self image and selfawareness Table 33 I09 66 Process of Being Selfdetermined Identify and express one39s own needs and interests and abilities Set expectations and goals to meet one needs and interests Make choices and plans to meet goals and expectations Take action to complete plan Evaluate results of actions Adjust plans and actions if necessary to meet goals more effectively lnterdependence Focuses on relationships that lead to a mutual acceptance and respect between people with and without disabilities Table 34 pg 70 WP 10 11 Keys for Enhancing SelfDetermination Teach decisionmaking skills that include setting goals Provide opportunities for choice making across environments Identify and establish with the individual the necessary and appropriate support Provide Opportunities for challenge and success Project believe in a person39s ability to succeed as well as in the person39s ability to survive failure Allow individuals the opportunity to take risks Allow individuals the opportunity to make mistakes and or fail and to learn from those mistakes Provide speci c positive feedback to facilitate selfawareness con dence and selfef cacy Allow individuals to accept and take responsibility for his decisions and acUons Provide environments that are accessible and promote individual39s utilization of strengths and abilities Offer reinforcement and acknowledgement of efforts and process of achieving goals lnclusion Provide opportunities to choose to be with peers and in regular settings embrace differences Mainstreaming Based on concept that all persons deserve to participate in the least restrictive environment possible lntegration Being of communityquot one of the core dimensions that contribute to quality of life Chapter 5 Discrimination Barriers Accessibility ADA Americans with Disabilities Act Pervasive Discrimination Society tends to isolate or segregate people with disabilities People with disabilities experience intentional as well as unintentional and wellmeaning discrimination Discrimination is pervasive occurring in all levels of society Discrimination occurs in critical areas of life including employment housing access to government services transportation communication and recreation There is often no satisfactory legal recourse for people with disabilities who have experienced discrimination People with disabilities generally occupy inferior social positions 7 3 4 FPSquot People with disabilities as a group of individuals have been powerless address to social inequities Additional Barriers and Attitude Change Attitude Theory The attitudes of society for individuals with disabilities have a signi cant impact on their ability to be active participants in various aspects of their communities including recreation and leisure pursuits Attitudes and Disabilities We must know an individual39s speci c attitude to understand what that person s speci c behavior maybe Wolfensberger pg 129131 Menace seen as annoyance at least and then as a threat to themselves or to the community Object of Pity pity is counterproductive Sickness often labeled as patient and less seldom as people Burden of Charity seen as not being able to take care of themselves and therefore must be taken care of by society Object of Ridicule made fun of Eternal Children regardless of age referred to as children Holy lnnocence to be a punishment or sometimes a gift from God Attitude change Personal contact and interaction most effective Persuasive communication persuade to have positive attitude towards people with disabilities Assumption of disability taste the experience of having a disability Physical Barriers environment restrictions LYHS 399001 030 Principles of Therapeutic Recreation I Fall 2015 SignUp Sheet 2 Community and National Organizations On Sept 15 brie y explain the services provided by two community and national organizations Submit information online by Class 25 points AAPDAmerican Association for People with Disabilities 2013 H Street NW 5th Floor Washington DC 20006 202 457 0046 VTTY 800 840 8844 Toll Free VTTY 866 536 4461 Fax Website httpwwwaapdcom MissionVision We promote equal opportunity economic power independent living and political participation for people with disabilities Our members including people with disabilities and our family friends and supporters represent a powerful force for change People Served Anyone with disabilities Key ProgramsFocus Education workplace and employment health housing interfaith international technology transportation veterans voting AARDAAmerican Autoimmune Related Diseases Association National Office 22100 Gratiot Ave Eastpointe MI 48021 5867763900 5867763903 fax Website httpwwwaardaorg MissionVision The American Autoimmune Related Diseases Association is dedicated to the eradication of autoimmune diseases and the alleviation of suffering and the socioeconomic impact of autoimmunity through fostering and facilitating collaboration in the areas of education public awareness research and patient services in an effective ethical and efficient manner People Served Individuals with Autoimmune and Autoimmune Related Diseases Key ProgramsFocus thsician Conferences The AARDA sponsors physician conferences and symposia in order to encourage collaboration in research and cross fertilization of treatment approaches scientific knowledge and pharmaceutical advancements The association also sponsors public seminars for patients and their families National Awareness Campaign A national public awareness campaign is a leading priority as a major focus of this organization because a lack of public information regarding autoimmune diseases is a significant factor in the death rate which can often be attributed to misdiagnosis or delayed diagnosis It is also a significant factor in high health care costs to individuals and companies alike Research The association funds basic research into autoimmunity as the underlying factor in the majority of serious chronic illnesses At the present there is no collaborative approach to autoimmune research The focus of most research has been directed to specific diseases rather than into autoimmunity Newsletter The association publishes a comprehensive quarterly national newsletter InFocuS This informative newsletter is mailed to a nationwide mailing list of interested persons ACBAmerican Council for the Blind American Council of the Blind 2200 Wilson Boulevard Suite 650 Arlington VA 22201 3354 Phone 202 467 5081 800 424 8666 Fax 703 465 5085 Minneapolis Area office 6300 Shingle Creek Parkway Suite 195 Brooklyn Center MN 55430 2136 Website httpwwwacborg MissionVision The American Council of the Blind strives to increase the independence security equality of opportunity and quality of life for all blind and visually impaired people People Served Serve individuals that are blind and focus on improving their quality of life Key ProgramsF0cusThrough its program of public education and information and referral ACB works tirelessly to educate the public and to inform blind and visually impaired people of their right to quality service delivery ACB promotes the exchange of ideas support and problem solving techniques to benefit blind and visually impaired citizens around the world ACB staff and elected officials make countless presentations every year to inform and train members blind people in general and other interested parties as to the most effective strategies to advocate for quality programs and services for the blindness community In addition ACB holds an annual legislative seminar in Washington DC to educate and train members on pending key legislative issues and provide them with the tools necessary to speak knowledgeably during visits to Capitol Hill ACB also sponsors quotACB Reportsquot a monthly news magazine program which is heard over more than one hundred local radio reading services across the United States In July each year the ACE holds its annual convention lasting seven days The convention and membership are the ultimate authority in policy making for the Council and serious issues are thoroughly eXplained and discussed Adaptive Sports Foundation Address 100 Silverman Way Windham NY 12496 Phone 518 734 5070 Website httpwwwadaptivesportsfoundationorgaboutus MissionVision The Adaptive Sports Foundation ASF is a non profit organization that provides profound and life changing eXperiences for children and adults with physical and cognitive disabilities and chronic illness through outdoor physical activity education support and community People Served Individuals with physical and cognitive disabilities and chronic illness Key ProgramsFocus Winter Programs The Adaptive Sports Foundation s work promotes physical activity for children and adults with disabilities by offering winter activities for recreational skiing snowboarding yoga and personal fitness Competition The ASF supports a competitive race team for athletes with both physical and cognitive challenges as well as a 12 week residential competition for paralympic eligible Summer The ASF summer program includes paddling windsurfing cycling fitness training yoga and water skiing Warriors in motion Provides basic knowledge of wellness and importance of practicing life ling healthful living ALS Association Website httpwwwalsaorg MissionVision Leading the fight to treat and cure ASL through global research and nationwide advocacy while also empowering people with Lou Gehrig39s Disease and their families to live fuller lives by providing them with compassionate care and support People Served Individuals who have Amyotrophic lateral sclerosis Key ProgramsFocus Medical Presentationscounseling ASL can be a very hard diagnosis to deal with and the specialist that are trained to help diagnose ASL offer presentations to help further educate families and individuals affected There are support groups and counseling provided for individuals to help understand and support emotionally throughout the eXperience Awareness There are huge campaigns for ASL awareness nationwide This allows for people to not only understand what ASL is but also gives a chance to raise money to help research for a cure such as the ASL ice bucket challenge and the Vermont Spartan sprint Research The ASL Association has committed 99 million to find effective treatments and a cure for Lou Gehrig s Disease They are currently no cures for ASL but through research they have learned about the SODl responsible for 20 percent of all inherited ASL cases Newsletter The ASL Association39s national e newsletter provides the latest news in ASL research and clinical trials public policy issues and care services information delivered each month The newsletter also covers ASL awareness activities taking place across the country and other stories of interest to the ASL community Alzheimer s Association Address 225 N Michigan Ave Fl 17 Chicago IL 60601 Website httpwwwalzorg MissionVision To eliminate Alzheimer s disease through the advancement of research to provide and enhance care and support for all affected and to reduce the risk of dementia through the promotion of brain health Vision A world without Alzheimer s Disease People Served All those affected by Alzheimer s disease the individual family members friends of the family members Key ProgramsFocus Increasing Concern and Awareness of the Disease and the Association Continue commitment to strengthen the momentum of the Alzheimer s disease movement by increasing concern about Alzheimer s disease Continue increasing unassisted awareness of the Alzheimer s Association in the Champions audience by 50 percent Increase constituent engagement through activities to support all strategic objectives Advancing Public Policy Steadily increase the Association s in uence with policymakers to achieve effective implementation of the National Alzheimer s Plan and established federal and state policy priorities The Alzheimer39s Impact Movement is what will make this accomplish able with executive strategies which will be used to develop knowledgeable professional productive relationships with state policymakers mobilizing Alzheimer s advocates in a comprehensive coordinated and activist oriented plan to engage their members of Congress and through the political activities of a respected and growing sister organization Enhancing Care and Support Increase the number of service contacts provided through quality measured Association programs and services directly delivered through chapters and the national organization through wwwalzorg and the Contact Center by 50 percent Conduct an assessment to identify appropriate standards and evidence based programs to ensure delivery of quality care including supportive and diagnostic services The results of this assessment will lead to collaboration with others within the broader dementia related field to achieve outcomes Accelerating Research The Alzheimer s Association continues to be the respected leader and largest non profit funder in advancing international Alzheimer s research They are committed to maintaining their leadership role in convening collaborating and coordinating to advance research and to playing a significant role in the direction and funding of research into the care cure and prevention of Alzheimer s disease through the eXpansion of private and public funding efforts domestically and abroad Growing Revenue Support of the Mission Achieve significantly greater Association wide mission impact by growing contributed revenue by an average of 8 percent per year and additional growth through the nationwide research campaign toward the five year goal of doubling all Association revenue to 450 million by 2019 through the development of an Association widephilanthropic culture including boards staff and volunteers at national and chapters that fully embraces prioritizes and invests in partnerships fundraising and revenue growth priorities as essential keys to the success of the mission wwwalzorg American Association on Health and Disability Address 110 N Washington Street Suite 328 Rockville MD 20850 Phone 301 545 6140 Fax 301 545 6144 Website httpwwwaahdus MissionVision The mission is to advance health promotion and wellness initiatives for children and adults with disabilities People Served American Association on Health and Disability serves children and adults with disabilities Key ProgramsFocus A major focus for the AAHD or the American Association on Health and Disability is to advance theory knowledge and practice and to eliminate health disparities in children and adults with disabilities AAHD represents people with disabilities in activities related to health and disability The AAHD also provides health promotion and wellness initiatives for people with disabilities AAHD mainly focuses on public health health promotion and health education Amputee Coalition Association Website httpwwwamputee coalitionorg MissionVision To reach out to and empower people affected by limb loss to achieve their full potential through education support and advocacy and to promote limb loss prevention People Served individuals who suffer from limb loss Key ProgramsFocus The Amputee Coalition Association provides a resource center for those individuals who suffer from limb loss They also provide support groups and peer support The Amputee Coalition Association also provides advocacy and education about limb loss Arizona Spinal Cord Injury Association Website httpwwwazspinalorg MissionVision a non profit organization dedicated to enhancing the lives of individuals with spinal cord injuries Our goal is to promote physical intellectual spiritual emotional and social recovery The Association focuses on peer and family support education of consumers families caregivers and professionals and linking people to vocational social and recreational resources People Served individuals who have suffered spinal cord injuries Key ProgramsFocus The AZ spinal cord injury association provides supports for those with spinal cord injuries through wheelchair skills transportation in home care peer mentoring and social events and education Aspire Therapeutic Riding Website httpwwwaspiretrporg MissionVision ASPIRE Therapeutic Riding Program provides benefits to individuals with disabilities through animal assisted activities and outreach programs They aim to improve the quality of life physically emotionally and cognitively They provide a variety of year round and outreach programs including clinics specific therapy classes conferences off site visits and retreats They have a fully certified and trained staff and receives many referrals from occupational and physical therapists counselors and medical professionals People Served They serve over 1000 people a year with a wide range of disabilities The riders experience various exercises and activities to build strength and balance as well as learn basic skills to take care of horses These people also experience a rich social life with the volunteers and staff helping to build self confidence and better self esteem Key ProgramsFocus Camp HOPE is an week long inclusion based day camp for ages six through adult They will learn many horsemanship skills as well as arts and crafts and cooking activities They also provide Horsemanship Class 101 102 and 103 programs that teach participants about health history nutrition and behavior of horses as well as how to take care of them They also host an annual Cowboy Breakfast to raise funds for Camp HOPE Address ASPIRE TRP 8100 Kimball Avenue Waterloo IA 50701 319 296 0964 Helpful Video httpswwwyoutubecomwatchv00BuMIt9yFkampfeatureyoutube Association for Spina Bifida and Hydrocephalus Website httpspinabifidaassociationorg httpwwwhvdroassocor2 Spina Bifida Address Hydrocephalus Address Spina Bifida Association of Iowa 4340 East West Highway 8525 Douglas Avenue Suite 39 Suite 905 Urbandale IA 50322 Bethesda MD 20814 4447 Phone 515 278 7013 Telephone 301 202 3811 888 598 3789 Email contact sbaiaorg Email info hydroassocorg MissionVision Spinda Bifida to promote the prevention of Spina Bifida and enhance the lives of all affected Hvdrocenhalus to promote a cure for hydrocephalus and improve the lives of those affected by the condition People Served Spina Bifida serves adults and Children who live with the challenges of Spina Bifida Hydrocephalus Infants children young adults and adults that have Hydrocephalus Key ProgramsFocus Spina Bifida ResearchSpina Bifida manifests itself as a number of conditions it is unlike any other disability While some conditions are primarily associated with Spina Bifida others are common to other kinds of disabilities In these areas research conducted by the Spina Bifida Community will reach beyond those who live with Spina Bifida and will benefit thousands and perhaps millions of people Counseling There are different types of counseling offered Parental before the Child is born but tests have proven that the fetus has developed Spina Bifida Family for families dealing with any type of Challenges with a family member who has Spina Bifida and to further educate the family There is also counseling for those who are affected by Spina Bifida mentally or physical counseling is provided Campship A camp designed for those with Spina Bifida to be around others with a similar background and a way to make friends and to enjoy a non judgmental environment for 2 weeks Newsletters There are Newsletters that you can sign up to receive electronically every few months through your local chapter to help inform people about events coming up for research funding or events for families and individuals affected by Spina Bifida Hydrocephalus Medical Conference We re excited to provide resources and connections at our national conference that address the medical educational and social complexities of living with hydrocephalus The National Conference attracts participants from all over the world including physicians researchers and individuals with hydrocephalus caregivers and others This extensive four day program will cover topics of interest to all members in the hydrocephalus community through interactive sessions research updates and educational seminars Awareness Hydrocephalus is starting to raise awareness through walks around the country to help raise money to continue research Research Research Focus Area Grants RFAs are aimed at tackling specific knowledge gaps in the root causes of hydrocephalus HA has run 2 grant cycles funding 3 grants focused on understanding Cerebral Spinal Fluid CSF dynamics in hydrocephalus In addition HA ran a similar grant cycle for the Rudi Schulte Research Institute Autism Speaks Website httpswwwautismspeaksor2 MissionVision At Autism Speaks our goal is to change the future for all who struggle with an autism spectrum disorder We are dedicated to funding global biomedical research into the causes prevention treatments and a possible cure for autism We strive to raise public awareness about autism and its effects on individuals families and society and we work to bring hope to all who deal with the hardships of this disorder We are committed to raising the funds necessary to support these goals Autism Speaks aims to bring the autism community together as one strong voice to urge the government and private sector to listen to our concerns and take action to address this urgent global health crisis It is our firm belief that working together we will find the missing pieces of the puzzle People Served Families and individuals struggling with ASD Key ProgramsFocus Fundraising Your Way Provides the ability to personally donate or create your own website and way of raising money and advocating autism Address 1 East 33rd Street 4th Floor New York NY 10016 Best Buddies Global Headquarters 100 Southeast Second St Suite 2200 Miami Florida 33131 Iowa 7648 Hickman Rd Des Moines IA 50324 Website httpwwwbestbuddiesorg MissionVision Their mission is to establish a global volunteer movement that creates opportunities for one to one friendships integrated employment and leadership development for people with intellectual and developmental disabilities IDD People Served They create one to one friendships for people with intellectual and developmental disabilities IDD Key ProgramsFocus Best Buddies has eight formal programs Middle Schools High Schools Colleges Citizens friendships between adults witl without IDD in corporate and civic communities eBuddies safe place online to establish friendship Jobs secures competitive pay for people Ambassadors group training and workshops to be leaders and public speakers in community and Promoters attend schools without special education department to become advocates for people with IDD These programs impact nearly 900000 individuals with or without disabilities worldwide There are Best Buddies programs in each of the 50 states here in the US and over 50 countries around the world As a result of their involvement with Best Buddies people with IDD get rewarding jobs live on their own become leaders and make lifelong friendships Brain Injury Association 1608 Spring Hill Road Suite 110 0 Vienna VA 22182 Website httpwwwbiausaorg MissionVision Their mission is to advance in brain injury prevention research treatment and education They would also like to improve the quality of life of those effected by a brain injuryThey bring hope help and healing to those living with brain injuries as well as the family and professionals who serve and help them all through advocacy People Served People with brain injuries and their families Key ProgramsFocus BIAA is focused on improving the quality of life for families and patients of brain injuries To do this they employ researchers doctors therapists etc to help research injuries the find the best treatments implement new treatments help advise the families among many other jobs They also put on programs and events throughout the US to raise money and awareness for BIAA Camp Courageous Website httpwwwcampcourageousorg MissionVision Camp Courageous is a year round respite care and recreational facility for individuals of all ages with disabilities The camp is not for profit organization People Served Anyone with a disability can attend Vision mental physical and other disabilities are typical of the individuals served Key ProgramsFocus Individuals with disabilities as well as their families should eXperience year round recreational and respite care activities in a camp setting The camp provides opportunities for social and personal growth within a supportive environment Campers learn to try a variety of creative and challenging activities and experience success Campers develop enhanced self esteem which carries over to work home or school environments programs include things like archery swimming canoeing arts and crafts climbing hiking and various snow activities for a a complete list of camper activities visit Camp Courageous Activities List under the Camper Info tab on the website CHADDChildren and Adults with Attention Deficit Disorder Address 4601 Presidents Drive Suite 300 Lanham MD 20706 Phone number 301 306 7070 Website httpwwwchaddor2 MissionVision CHADD improves the lives of people affected by ADHDquot People ServedCHADD represents more than 12000 members Most are families of children and adults with ADHD About 2000 CHADD members are professionals providing clinical and other services to persons with ADHD Key ProgramsFocus Parent to Parent Training CHADD Conferences and Trainings Joining or Renewing your CHADD membership or logging in to the CHADD site Public Policy Concerns Donating to CHADDsponsorshipspartnershipscollaboration Volunteering for CHADD Advertising on our website or in our publications Children s Cancer Connection Children s Cancer Connection 2708 Grand Ave Des Moines IA 50312 Telephone 515 243 6239 Toll Free 877 535 7802 Fax 888 279 5528 E Mail Info childrenscancerconnectionorg Website wwwchildrenscancerconnectionorg MissionVision The Children s Cancer Connection serves all families affected by childhood cancer who are living treated or diagnosed in the state of Iowa regardless of treatment outcome People Served The entire family patient mom dad brothers and sisters are all focused on throughout their cancer journey The entire family The entire journey Key ProgramsFocus Camp Heart Connection Oncology Camp Oncology Camp provides children with cancer a week of typical camp activities and so much more Campers are able to spend time with others who are going through the same emotions as they are Returning campers who are off treatment provide hope to our new campers and nobody has to worry about not fitting in due to scars or hair loss Our staff is trained to be sensitive and supportive of all of the campers Camp Heart Connection Sibling Camp Sibling Camp provides siblings of children with cancer the opportunity to be the stars of their own week We hear from siblings that they are often put on the back burner as the child with cancer receives a lot of attention and we use sibling camp to make sure they are in the spotlight Sibling Camp is also a place to share feelings about being shuf ed amongst relatives as parents find ways to be present for the child with cancer Finally Sibling Camp is a safe place for bereaved siblings to meet other kids coping with the same thing Hospital Based Programs Along with the amazing camp programs CCC provides for its families they also run various hospital based programs They are responsible for arts and crafts at Blank Children39s beads for bravery U ofI and Blank Children39s every treatment poke an procedure has it s own special bead At the end of treatment children have beads that can be yards long It s a tangible result of all their hard work and bravery throughout their childhood end of treatment parties at Blank Children39s as well as family resource kits for new diagnoses at both Blank Children s and U of I Children s Hospitals Comprehensive Systems Inc Website wwwcomprehensivesystemsorg MissionVision Mission We Support Individuals With Special Needs Vision A Recognized Leader in Providing Quality Services amp Supports People Served people with special needs Key ProgramsFocus ICFID Intermediate Care Facility Supported Community Living Respite Day Habilitation Organizational Employment Pre Vocational Employment Location of Home Office 1700 Clark Street PO BOX 457 Charles City IA 50616 641 228 4842 Department of Veterans Affairs Address 810 Vermont Avenue NW Washington DC 20420 202 461 6630 Veterans Crisis Line 1 800 273 8255 Press 1 Website httpwwwvagov MissionVision Providing America s Veterans with the best in benefits and health care The Department of Veterans Affairs is committed to providing quality information and service to our veterans and to other who visit their website People Served Veterans and their families Survivors caregivers and other beneficiaries Key ProgramsFocus The Department of Veterans Affairs focuses on Health Care Benefits and Burials and Memorials for veterans who have served or have died in action The VA has Hospitals Clinic Vet Centers Regional Benefits offices Local Benefits offices and cemetery locations all over the Untied States The Center for Faith based and Neighborhood Partnerships sector of the US Department of Veterans Affairs develops partnerships with provides relevant information to and eXpands participation of faith based nonprofit and communityneighborhood organizations in VA programs Disability Rights Advocates Disability Rights Advocates Home Office 2001 Center Street Fourth Floor Berkeley CA 94704 1204 510 665 8644 Voice 510 665 85 11 Fax 510 665 8716 TTY Website httpwwwdralegalorg httpwwwndrnorgaboutDaacapnetworkhtml MissionVision DRA focuses on high impact class action litigation to protect the civil rights of people with all kinds of disabilities throughout the nation DRA represents people with disabilities in numerous cases seeking access to key activities of mainstream life People Served All individuals with any type of disability Key ProgramsFocus Protection and Advocacy PampA PampA agencies have the authority to provide legal representation and other advocacy services under all federal and state laws to all people with disabilities based on a system of priorities for services All PampAs maintain a presence in facilities that care for people with disabilities where they monitor investigate and attempt to remedy adverse conditions These agencies also devote considerable resources to ensuring full access to inclusive educational programs financial entitlements healthcare accessible housing and productive employment opportunities Client Assistance Program CAPCAP agencies many of which are housed within PampA offices provide information and assistance to individuals seeking or receiving vocational rehabilitation VR services under the Rehabilitation Act including assistance in pursuing administrative legal and other appropriate remedies DisabilityGOV Website httpswwwdisabilitygov MissionVision The site s purpose is to connect people of all abilities to the resources they need to fully participate in their communities People Served Disability gov has a diverse audience ranging from individuals with disabilities their families and caregivers to veterans employers educators and many others Key ProgramsFocus Disability gov is the federal government information and referral website website for comprehensive information about disability related programs services policies laws and regulations The site links to thousands of resources from many different federal government agencies as well as state and local governments and nonprofit organizations across the US They focus on 10 main areas Benefits Civil Rights Community Life Education Emergency Preparedness Employment Health Housing Technology and Transportation Disabled American Veterans Address 3725 Alexandria Pike Cold Spring KY 41076 877 I AM A VET 877 426 2838 Website httpwwwdavorg MissionVision Fulfilling our promises to the men and women who served People Served They serve all American veterans and their families by providing benefits and services earned through military services and other agencies of government The Disabled American Veterans invite everyone veterans and civilian men and women young and old to join and stand up for the veterans who risked it all as they stood up for the country Key ProgramsFocus Their main purpose is to empower veterans to lead high quality lives with respect and dignity They provide outreach concerning its program services to disabled veterans and mainly their families Another program they offer is providing a structure which disabled veterans can eXpress their compassion for their fellow veterans through many different volunteer programs Disabled Sports USA Website httpwwwdisabledsportsusaorg Mission Disabled Sports USA s mission is to provide national leadership and opportunities for individuals with disabilities to develop independence confidence and fitness through participation in community sports recreation and educational programs Vision Every day we work hard to pursue our vision that every person regardless of ability has an equal opportunity to participate in sports and recreation in their community People Served Disabled Sports USA serves over 60000 individuals every year through their nationwide network Members they serve include youth wounded warriors and adults with a variety of disabilities Key ProgramsFocus Their main focus includes one goal To improve the lives of wounded warriors youth and adults with disabilities by providing sports and recreation activities Their network includes over 100 community based chapters in 37 states and offer over 40 different sports such as rock climbing Nordic skiing and rafting Easter Seals Society Website MissionVision People Served Key ProgramsFocus Equal Employment Opportunity Commission Website httpwwweeocgov Mission To stop and remedy unlawful employment discrimination Vision Justice and equality in the workplace People Served They serve all job applicants and employees by enforcing federal laws that make it illegal to discriminate against a person based on race color religion seX national origin age disability or genetic information Key ProgramsFocus Their role is to investigate charges of discrimination and fairly and accurately assess the allegations They then work to settle the charge or file a lawsuit They also work to prevent discrimination before it occurs through outreach education and technical assistance programs EEOC ensures that federal agencies and departments abide by regulations evaluates employment programs distributes educational material and assists in conduct hearings Address EEOC Headquarters US Equal Employment Opportunity Commission 131 M Street NE Washington DC 20507 Milwaukee Area Office Reuss Federal Plaza 310 West Wisconsin Avenue Suite 500 Milwaukee WI 53203 Exceptional Persons Inc 760 Ansborough Avenue PO Box 4090 Waterloo IA 50704 4090 319 232 6671 email episerviceorg Website httpswwwepiserviceorg MissionVision Exceptional Persons Inc EPI makes a positive difference for people living with disabilities enhances community child care and strengthens families People Served People with disabilities housing and employment families needing childcare Key ProgramsFocus Employment support in homecommunity day habilitation respite consumer directed attendant care advocacy and counseling payee services borrow health equipment child care referrals transportation Leukemia and Lymphoma Society National Office The Leukemia amp Lymphoma Society 1311 Mamaroneck Avenue Suite 310 White Plains NY 10605 Phone 914 949 5213 Fax 914 949 6691 Website wwwllsorg MissionVision The mission of The Leukemia amp Lymphoma Society LLS is Cure leukemia lymphoma Hodgkin39s disease and myeloma and improve the quality of life of patients and their families LLS eXists to find cures and ensure access to treatments for blood cancer patients We are the voice for all blood cancer patients and we work to ensure access to treatments for all blood cancer patients People Served Those who are currently and those who have previously battled blood cancers such as Leukemia Lymphoma Hodgkin s disease and Myeloma Key ProgramsFocus The Leukemia Lymphoma Society provides a number of programs for patients both locally and nationally All with their main focus to find a cure to blood cancers They fundraise in a variety of ways such as Light The Night Walks Student Series where schools throughout the US and Canada fundraise for the LLS The Leukemia Cup Regatta sailing for a cure and finally through a fundraising competition for Man and Woman of the year where participants earn their titles based off of fundraising efforts in the 10 week competition Life Rolls On Website httpwwwliferollsonorg MissionVision Life Rolls On gives people the exhilaration of freedom beyond paralysis And when we blow away physical boundaries mental walls also fall away I can t becomes I DID People Served People with spinal cord injuries Key ProgramsFocus A junior US surfer Jesse Billauer was a breath away from turning pro when a wave slammed him into a sandbar Paralyzed instantly He still wanted to surf even though he now had a spinal cord injury Jesse went to a surf board shop to get adaptive equipment The company ended up making custom surf boards for Jesse and this lead him to be the only paralyzed surfer to surf the massive waves in Fiji and complete the US Open of surfing This all led Jesse to wanting to share this freedom so he created Life Rolls On to improve the quality of life for people with spinal cord injuries as well as other people that are paralyzed Anyone can participate all ages and all abilities Miracles in Motion Website httpwwwmiraclescanmoveyoucon1 MissionVision Confidence Comfort Strength Community Let it move you People Served Miracles in motion serves more than 150 students that consist of children and adults with cognitive and physical disabilities from the surrounding counties in Eastern Iowa Key ProgramsFocus Miracles in motion focuses on providing a safe place for learning trying new things and enhancing relationships as well as attitudes Muscular Dystrophy Association Website httpwwwmdaorg Address Muscular Dystrophy Association USA National Office 222 S Riverside Plaza Suite 1500 Chicago Illinois 60606 MissionVision To save and improve lives of people fighting muscle disease People Served The world s leading nonprofit health agency dedicated to finding treatments and cures for muscular dystrophy amyotrophic lateral sclerosis ALS and other neuromusculardiseases Key ProgramsFocus Telethons Host events nation wide Accept voluntary care givers Equipment assistance Summer Camp Support families money invested into patient services Find Cures and bring awareness to Muscular diseases National Association for Down Syndrome Website httpwwwnadsorg MissionVision The National Association for Down Syndrome supports all persons with Down syndrome in achieving their full potential In fulfilling our mission we will Provide families with Down syndrome members with information and resources to enable them to access and evaluate appropriate services Educate the public about Down syndrome Address social policy issues and challenges facing the Down syndrome community Facilitate and encourage active participation by self advocates and families in the delivery of education vocational residential and other services for persons with Down syndrome People Served Parent Support Resource Referrals Public Awareness Self Advocate Program More Than Down Syndrome Retreats Conferences amp Seminars Public Speakers for Schools Medical Professionals and Community Organizations Key ProgramsFocus Parent support self advocate and public awareness are just some of the programs that NADS has National Association of the Deaf Website httpnadorg MissionVision The mission of the National Association of the Deaf is to preserve protect and promote the civil human and linguistic rights of deaf and hard of hearing people in the United States of America People Served For deaf and hard of hearing individuals in the United States of America Key ProgramsFocus The vision of the NAD is that the language culture and heritage of deaf and hard of hearing Americans will be acknowledged and respected in the pursuit of life liberty and equality National Autism Association Website httpnationalautismassociationorg MissionVision The mission of the National Autism Association is to respond to the most urgent needs of the autism community providing real help and hope so that all affected can reach their full potential People Served Families and individuals that are impacted by autism Key ProgramsFocus Helping hand Financial aid tool for qualified families to pay for medical services used to treat individuals with autism Big Red Safety BoWOUND Provides direct assistance to law enforcement agencies and caregivers FOUND Supplies funding to search and rescue agencies in need of tracking technology and training Big Red Safety Teachers Toolkit BOX for teachers who work with children with ASD Just have to apply Give a Voice Provides communication devices to families and individuals who are limited with communication skills and are in dire financial need Given to those whose lack of ability to communicate puts them in harm Autism ATRIUM Provides a regular schedule of learning opportunities online through WebiNAArs As well as series of blogs from eXperts National Autism Conference Held yearly The founding board member attends and speaks along with many other speakers who are knowledgeable Breakout sessions are held and give families knowledge and escape through the event being held at a resort 2015 Conference at Tradewinds Island Grand Resorts on St Pete Beach Florida Autism Friendly resort Address One Park Avenue Suite 1 Portsmouth RI 02871 National Center for Learning Disabilities Address 32 Laight St New York NY 10013 phone 888 575 7373 Website httpwwwncldorg MissionVision The mission of NCLD is to improve the lives of the one in five children and adults nationwide with learning and attention issues by empowering parents and young adults transforming schools and advocating for equal rights and opportunities We re working to create a society in which every individual possesses the academic social and emotional skills needed to succeed in school at work and in life People Served Parents Professionals Educators and childrenadults with learning and attention issues Key ProgramsFocus This organization refers you to other organizations in which you can gather information about children with learning disabilities and programs for them The other organizations include Understood for parents Provides information to parents about school and learning friends and feelings you and your family and community events for their children Friends of Quinn for young adults Provides information to young adults about what it s like for others living with learning disabilities facts about learning disabilities community events and helps them connect to others who have learning disabilities Get Ready to Read for educators Provides information for educators on skill building activities for reading early learning and childhood basics screening tools literacy games and how to work with parents Navigators for professionals Provides information as a clinical tool that pediatric healthcare professionals can incorporate into their practices RTI Action Network for educators Provides information to educators on how to use the response to intervention method in the school setting The website also provides the milestones of school aged children and how to incorporate those milestones into a response to intervention plan National Center on Physical Activity and Disability Website httpwwwnchpadorg Address 4000 Ridgeway Drive Birmingham Alabama 35209 MissionVision NCHPAD39s mission to improve inclusion for people with disabilities in all aspects of society Building inclusive healthy communities Promoting inclusive health communication Creating inclusive policies and programs Providing professional training Grant and affiliation information People Served NCHPAD seeks to help people with disability and other chronic health conditions achieve health benefits through increased participation in all types of physical and social activities including fitness and aquatic activities recreational and sports programs adaptive equipment usage and more Key ProgramsFocus Type of program depends on which state you live For Cedar Falls Iowa gt Sartori Wellness Center Address Address Sartori Memorial Hospital Second Floor 515 College Street Cedar Falls IA 50613 gtActivities offered Aerobics Fitness Tai Chi Water Aerobics Exercise Weight Training 0 Yoga 0 0 000 O 0 National Family Caregivers Association Caregiver Action Network 1130 Connecticut Ave NW Suite 300 Washington DC 20036 Website httpcaregiveractionorg MissionVision The mission of the National Family Caregivers Association is to promote resourcefulness and respect for more than 65 million family caregivers across the country People Served This association serves the family caregivers Key ProgramsFocus Create Resourceful Caregivers Serve family caregivers with practical help support and information Reduce Caregiver Stress Improve the quality of life for family caregivers by reducing their day to day stress and financial distress Create Respect For Family Caregivers Advance the case for family caregiver recognition and support Create Capable Caregivers Build family caregivers confidence and capability through the dissemination of educational programs that demonstrate a positive impact on the lives of family caregivers Resources There is an online family caregivers toolbox that provides videos tips and websites for caregivers on different topics they might be struggling with understanding Agencies and Organizations Provides a list of organizations and agencies for caregivers with valuable information about them whether you are a family caregiver a professional caregiver or looking for additional information on issues related to family care giving Caregiver Video Resource Center Take comfort in knowing you are not alone by hearing what your fellow family caregivers have to say What is CCAN Explains what the Caregiver Community Action Network is and how you can become a volunteer CAN Story Project Share your story and read stories of other caregivers Tips for caregivers Forum An online board where you can Chat with other caregivers National Federation of the Blind NFB Website httpsnfborg MissionVision To achieve widespread emotional acceptance and intellectual understanding that the real problem of blindness is not the loss of eyesight but the misconceptions and lack of information which exist We do this by bringing blind people together to share successes to support each other in times of failure and to create imaginative solutions People Served Anyone who is blind The NFB strives also to educate the public on blindness and to Key ProgramsFocus The purpose of the National Federation of the Blind is two fold to help blind persons achieve self confidence and self respect and to act as a vehicle for collective self expression by the blind By providing public education about blindness information and referral services scholarships literature and publications about blindness aids and appliances and other adaptive equipment for the blind advocacy services and protection of civil rights development and evaluation of technology and support for blind persons and their families members of the NFB strive to educate the public that the blind are normal individuals who can compete on terms of equality The International Braille and Technologv Center for the Blind IBTC The Jacob Bolotin Award Program Jacobus tenBroek Librarv NFB LINK NFB NEWSLINE Race for Independence NFB Youth Slam NFB Scholarship Program Braille Readers Are Leaders Program Braille Is Beautiful Braille Reading Pals Early Literacy Program Possibilities Fair for Seniors National Fragile X Foundation Address 1615 Bonanza St 202 Walnut Creek CA 94596 Website httpsfragilexorg phone 202 747 6210 MissionVision The National Fragile X Foundation unites the fragile X community to enrich lives through educational and emotional support promote public and professional awareness and advance research toward improved treatments and a cure for fragile X syndrome People Served Those with fragile X syndrome and their families Key ProgramsFocus This program provides information and events in which people with Fragile X and their families can talk about their struggles and get to know others that have been effected by Fragile X syndrome These events include International Fragile X Conference Discover the latest research by some of the world s leading Fragile X eXperts Learn new techniques behavioral interventions and coping strategies Connect with researchers clinicians educators psychologists and parents Let Em Know 5K It is a virtual runwalk to help you raise awareness and funds for Fragile X from anywhere in the world National Multiple Sclerosis Society Upper Midwest TEL 612 335 7900 FAX 612 335 7997 EMAIL INFOMSSOCIETYORG 200 12th Ave S Minneapolis MN 55415 Website httpwwwnationalmssocietvbrgl MissionVision We mobilize people and resources to drive research for a cure and to address the challenges of everyone affected by MS People Served The Society helps people affected by MS Key ProgramsFocus The society funds cutting edge research drives change through advocacy facilitates professional education and provides programs and services that help people with MS and their families move their lives forward National Osteogenesis Imperfecta Foundation For questions or comments related to OI or the OI Foundation write to 804 W Diamond Ave Suite 210 Gaithersburg MD 20878 The OI Foundation office is open MondayFriday 9am5pm Eastern Telephone 301 947 0083 Toll Free 844 889 7579 Fax 301 947 0456 Email bonelinkoiforg Website httpwwwoiforgsitePageServer MissionVision Improve the quality of life for people affected by osteogenesis imperfecta OI through research to find treatments and a cure education awareness and mutual support People Served Individuals affected by osteogenesis imperfecta Key ProgramsFocus The foundation offers support groups in different locations They also hold different events throughout the year to help raise awareness of OI and raise money for the foundations A couple events they hold are The National Conference National Walk and Wheel Regional Conference Fine Wines Strong Bones and Blue Jeans for Better Bones NCDANational Council on Disability Affairs Website MissionVision People Served Key ProgramsFocus NODNational Organization on Disability Website httpwwwnodorgabout us Mission NOD is a private non profit organization that promotes the full participation and contributions of America s 56 million people with disabilities in all aspects of life Today NOD focuses on increasing employment opportunities for the 79 percent of working age Americans with disabilities who are not employed Founded in 1982 NOD is one of the oldest cross disability organizations in the country and remains one of the few organizations committed to representing all Americans with disabilities regardless of their particular condition or circumstances Vision NOD s vision is that people with disabilities will be actively recruited for a broad range of jobs and careers and employers will be rewarded by the high productivity problem solving abilities and diversity of thinking that people with disabilities bring to the workforce Workers with disabilities will have positive financial incentives to work receive the education and training they need to prepare them for successful job performance and have the accommodations and professional development opportunities needed for career advancement People Served Helping the most severely injured veterans of the wars in Iraq and Afghanistan to move forward on career paths Key ProgramsFocus Make a tax deductible contribution to the National Organization on Disability in support of our work on behalf of America s 56 million men women and children with disabilities Your contribution will help us change the way America works North Star Community Services Address Administration amp Services Main Of ce 3420 University Ave Waterloo IA 50701 Phone 319 263 0901 Fax 319 263 3701 Newel Post Adult Day amp Respite Services 1108 Tiffany Place Waterloo IA 50701 Phone 319 234 1391 Brain Injury Program 3623 Canterbury Court Waterloo IA 50702 Phone 319 263 35 81 Website northstarcsorg MissionVision North Star Community Services mission is to empower each person to realize potential pursue dreams and enjoy life People Served North Star serves people with a wide range of disabilities They serve elders with age related disabilities adults and youth with the full range of developmental and other physical and mental disabilities including traumatic brain injury Key ProgramsFocus North Star provides many programs and services They provide adult day services employment services and supported living community services so individuals with disabilities are better able to live life to the fullest in the community North Star also provides day habilitation services a day habilitation advantage program organization employment services work program and a head injury off sight program HIP North Stars focus is to help adults with a wide range of disabilities live an enriched and empowered lives in the community North Star is there to lend support and help create opportunities PACER Center 8161 Normandale Blvd Bloomington MN 55437 Website httpwwwpacerorg MissionVision The mission of the PACER Center Parent Advocacy Coalition for Educational Rights is to eXpand opportunities and enhance the quality of life of children and young adults with disabilities and their families based on the concept of parents helping parents People Served PACER s is for families and their children or young adults with disabilities or special health care needs from birth through adulthood PACER s is also for educators and other professionals who work with students with or without disabilities Finally PACER s is for parents of all children and schools working together to encourage family involvement in education Key ProgramsFocus Through over 30 projects the PACER Center provides individual assistance workshops publications and other resources to help families make decisions about education and other services for their child or young adult with disabilities Programs They offer programs for children and young adults with all disabilities their parents and families and the professionals working with the families Resources Programs Publications Web sites Newsletters Workshops Webinars Public Policy and Videos all provided free to families of children or young adults with all disabilities Events PACER s holds several special events throughout the year and community involvement is always appreciated through volunteers corporate sponsorships and attendance at the events News Newsletters and Press Room Get Involved You can join PACER Center in being a champion for children with disabilities Your donation of time skills or financial support will help PACER strengthen families and the community OOOOOOO OOOOOOO Partners for Youth with Disabilities 95 Berkeley Street Suite 109 Boston MA 02116 Website httpwwwpvdorg MissionVision Partners for Youth with Disabilities PYD empowers youth with disabilities to reach their full potential by providing transformative mentoring programs youth development opportunities and inclusion expertise We motivate youth to reach their personal educational and career goals and guide organizations in becoming more inclusive People Served Everyone Key ProgramsFocus Mentor Match getting one on one community based mentoring programs ages 6 24 with disabilities mentors serve as an extra friend and supporter helps them to work on personal golds while also having fun Making healthy connections MHC this group is for ages 14 22 with or without disabilities group sessions focus on helping youth understand their health care needs involves guest speakers and adaptive recreational activities Access to Theatre ATT ages 14 22 with or without disabilities productions held on ongoing bases throughout year youth driven all theatre productions offered Youth Entrepreneurs Project YEP career readiness programs school based Paralyzed Veterans of America National Headquarters 801 Eighteenth Street NW Washington DC 200063517 PVA Donation Processing Center 7 Mill Brook RD Wilton NH 03086 PVA Donation Procession Center PO Box 758532 OOOOO Topeka KS 666758532 WebsitehttDwwwpvaorgsitecaiIRK9NJLcJ2Eb6305401k27DlParalvzed Veterans of Americahtm MissionVision Paralyzed Veterans of America a congressionally chartered veterans service organization founded in 1946 has developed a unique expertise on a wide variety of issues involving the special needs of our members veterans of the armed forces who have eXperienced spinal cord injury or dysfunction People Served Veterans Key ProgramsFocus small programs are held throughout the year examples PVA fights for quality VA health care and decent health benefits helps out serious wounded heroes get back into life through adaptive sports help veterans with disabilities get a fair shot at the American Dream a good job at a good company Pet Pals Website Website httppetpalscedarvalleyiaorgcontact pet palshtml MissionVision Pets in Education and Therapy People and Animals in Life Sharing People Served Everyone Key ProgramsFocus Pet Pals teamed up with the Cedar Bend Humane Society formally known as the Black Hawk Humane Society in June 1983 Pet Pals is a program that has volunteers come with their pets The pets can be any animal including dogs cats and other domestic species These animals are then screened for health temperament and suitability as a therapy animal If the pet passes all these tests and screenings then the pet then can join a team or do random visits Some volunteers are assigned to a team which visits a facility on a regular basis The team is guided by the social worker or activity director within the facility Otherwise if the volunteers can visit other areas and locations such as with the residents of public and private care facilities hospitals adult day care centers hospices youth shelters group homes schools and individuals within the Black Hawk County area Special Olympics International Website httpwwwspecialolvmpicsorgmissionastsourceOL MissionVision The mission of Special Olympics is to provide year round sports training and athletic competition in a variety of Olympic type sports for children and adults with intellectual disabilities giving them continuing opportunities to develop physical fitness demonstrate courage eXperience joy and participate in a sharing of gifts skills and friendship with their families other Special Olympics athletes and the community People Served Athletes are the heart of Special Olympics Our athletes are children and adults with intellectual disabilities from all around the world They are finding success joy and friendship as part of our global community They39re also having lots of fun Key ProgramsFocus Everybody is different Special Olympics is for people who are different because they learn new skills slowly They may not understand ideas that other people learn easily They are different in other ways as well They have an intellectual disability or ID Intellectual disabilities happen in all cultures races and countries The goal of Special Olympics is to reach out to the 200 million people in the world with ID Special Olympics Iowa Special Olympics Iowa 551 SE Dovetail Road PO BOX 620 Grimes IA 50111 877 267 0134 Website wwwsoiowaorg MissionVision Special Olympics is a global organization that unleashes the human spirit through the transformative power and joy of sport everyday around the world Through programming in sports health education and community building Special Olympics is changing the lives of people with intellectual disabilities solving the global injustice isolation intolerance and inactivity they face Special Olympics is providing opportunities for more than 44 million athletes 13 million volunteers and millions more people worldwide through 226 Accredited Special Olympics Programs in more than 170 countries People Served Individuals with intellectual disabilities Key ProgramsFocus Special Olvmpics To provide year round sports training and athletic competition in a variety of Olympic type sports for children and adults with intellectual disabilities giving them continuing opportunities to develop physical fitness demonstrate courage experience joy and participate in a sharing of gifts skills and friendship with their families other Special Olympics athletes and the community Unified Sports Dedicated to promoting social inclusion through shared sports training and competition experiences Special Olympics Unified Sports creates an opportunity for people without intellectual disabilities to join in the sports experience by playing on a team with athletes with intellectual disabilities It was inspired by a simple principle training together and playing together is a quick path to friendship and understanding Challenge Days A one day event designed specifically for the severe and profound population of Iowa as well as our aging population Challenge days introduce team sports adapted for the severe and profound as well as those who are unable to participate in the traditional Special Olympics programs Spina Bifida Association of America Address 4590 MacArthur Blvd NW Suite 250 Washington DC 20007 Phone 202 944 3285 ext 23 Fax 202 944 3295 Website wwwsbaaorg MissionVision To promote the prevention of Spina Bifia and enhance the lives of all those affected through education research advocacy and service People Served Individuals with Spina Bifida Key ProgramsFocus SBAA has a network of Chapters present in more than 125 communities nationwide with headquarters at Washington DC Many of these clinics provide programs activities and resources for kids and families with spina bifida SBAI provides services such as quarterly newsletter reimbursement program public awareness campaigns Chapter and member services and much more Main focus is to work with those whom have spina bifida and their families TASH TASH 2013 H Street NW Suite 715 Washington DC 20006 P 202 540 9020 Website Mashmg MissionVision The mission of TASH is to promote the full inclusion and participation of Children and adults with significant disabilities in every aspect of their community and to eliminate the social injustices that diminish human rights These things are accomplished through collaboration among self advocates families professionals policy makers advocates and many others who seek to promote equity opportunity and inclusion TASH has a vision of a world in which people with disabilities are included and fully participating members of their communities with no obstacles preventing equity diversity and quality of life TASH envisions communities in which no one is segregated and everyone belongs People Served People with significant disabilities and support needs those most vulnerable to segregation abuse neglect and institutionalization Key ProgramsFocus Advocacy From helping shape the Federal Rehabilitation Act and Americans with Disabilities Act to providing testimony and legislative advocacy in every landmark case that has established the right of Children with disabilities to a free and appropriate education or the right of adults to live and work in a setting of their Choice TASH has led grassroots efforts held national policy discussions and united advocates to create change Inclusive Education Transform school communities based on social justice principles in which all students a are presumed competent b are welcomed as valued members of all general education classes and extra curricular activities in their local schools c fully participate and learn alongside their same age peers in general education instruction based on the general education curriculum and d eXperience reciprocal social relationships Community Living Expand the provision of person centered long term supports and individualized choice for community living for people with intellectual and developmental disabilities in every state Employment Increase the employment rate for people with intellectual and developmental disabilities and eliminate federally sanctioned sub minimum wages Diversity and Cultural Competencv EXpand the participation rates of people of diverse backgrounds who have disabilities in advocacy efforts and every aspect of life Human Rights Eliminate the use of aversive interventions as an acceptable strategy for behavior modification or control and promote positive and proactive strategies to prevent dangerous situations TDITelecommunications for the Deaf Website httpstdiforaccessorg MissionVision Vision We see a world of tomorrow where persons who are deaf or hard of hearing have barrier free access to all forms of information entertainment and telecommunications thus enabling them to live independently and to fully participate in society Mission TDI provides leadership in achieving equal access to telecommunications media and information technologies for deaf and hard of hearing people People Served people who are deaf hard of hearing late deafened or deaf blind Key ProgramsFocus Purpose TDI formally known as Telecommunications for the Deaf and Hard of Hearing Inc was established in 1968 originally to promote further distribution of TTYs in the deaf community and to publish an annual national directory of TTY numbers Today it is an active national advocacy organization focusing its energies and resources to address equal access issues in telecommunications and media for four constituencies in deafness and hearing loss specifically people who are deaf hard of hearing late deafened or deaf blind What they do Educate consumers and encourage their involvement in the continuing struggle for accessible telecommunications media and information technologies I Provide technical assistance and consulting to industry organizations and individuals I Encourage accessible applications of eXisting and emerging technologies in all sectors of the community Promote the uniformity of standards for telecommunications media and information technologies Network and collaborate with other disability organizations government industry and academia Develop and advocate for national policies that support accessible technology Publish the TD World quarterly magazine Publish the annual TDI National Directory and Resource Guide also known as The Blue Book Disseminate TDI eNotes to members and friends of TDI with up to date news and action alerts Host biennial conferences in different locations throughout the United States in odd numbered years The Arc formerly ARC Association for Retarded Citizens Address 1825 K Street NW Suite 1200 Washington DC 20006 Website httpwwwthearcorg MissionVision To advocate for the rights and full participation of all children and adults with intellectual and developmental disabilities People Served Children and adults with disabilities and their families Key ProgramsFocus On a local level they provide respite care supported community living after school care individual advocacy programs and job training On a more wide spread level they organized a special needs trust to provide funding to like organizations and are advocates for public policy regarding people with disabilities They also offer a Fetal Alcohol Spectrum Disorder Prevention Program to educate the public on the risk of FASD and how to prevent it They also have a national convention which is going to be held in October in Indianapolis The Arc also provides a National Sibling Council to provide support and education to the siblings of people with disabilities The NADDThe National Association for the Developmental Disabilities Dually Diagnosed Website MissionVision People Served Key ProgramsFocus United Cerebral Palsy Association 1825 K Street NW Suite 600 Washington DC 20006 Website httpucporg MissionVision The United Cerebral Palsy Association educates advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities UCP works to advance the independence productivity and full citizenship of people with disabilities through an affiliate network that has helped millions People Served People with Cerebral Palsy and other disabilities and their families Key ProgramsFocus Public Education Their website provides a lot of information on Cerebral Palsy and they provide a hotline for people to call with questions and to get support They also have a program called My Child Without Limits which is for parents with kids under 5 who have disabilities or developmental delays This program provides a Read Speaker to assist those with trouble reading support and a help packs for parents The other program they support is My Life Without Limits This program is for adolescents and adults with disabilities It provides information resources and an online community to discuss topics such as health housing employment relationships and current events The United Cerebral Palsy Association also funds the UCP Life Labs which researches and develops ideas to improve the lives of people with disabilities United Spinal Association Website MissionVision People Served Key ProgramsFocus USAAAUS Autism and Asperger Association PO Box 532 12180 S 300 E 532 Draper UT 84020 0532 Website httpwwwusautismorg MissionVision USAAA is an organization dedicated to Asperger s and Autism education support and solutions They have been improving the quality of life for those affected by Aspergers and Autism since 1995 They would like anyone living with Autism Aspergers and other related disorders to be able to reach their full potential by enriching the Autism and Asperger community with education training resources and partnerships with local and national projects People Served All those with Aspergers Autism and other related disorders as well as families and other effected Key ProgramsFocus The USAAA has a team of professionals and eXperts in the field trained to continue to train others on different areas included with Aspergers Autism and other related disorders Every year USAAA holds a world conference that brings in eXperts to talk about resources for you your family member child friend etcUSAAA also provides a parent program and sibling program which provides more training as well as support from others in similar situations Another big program that USAAA has is the College Autism Project This provides students who are on the autism spectrum to be successful in college because for many secondary education is a very difficult challenge USAAA provides curriculum and training for those who want to be able to help those on the autism spectrum as well as help those who are on the autism spectrum be successful in college World Association of Persons with Disabilities Website MissionVision People Served Key ProgramsFocus World Institute on Disability 3075 Adeline Street Suite 155 Berkeley CA 94703 Website httpwwwwidorg MissionVision The mission of the World Institute on Disability WID in communities and nations worldwide is to eliminate barriers to full social integration and increase employment economic security and health care for persons with disabilities WID creates innovative programs and tools conducts research training public education and advocacy campaigns and provides technical assistance People Served People with disabilities Key ProgramsFocus Employment and Disability Bene ts Initiative WID developed this in 2000 to provide information on health coverage work and benefits to youth and adults with disabilities in California Access to Assets Opens doors for the disability community by promoting asset building and financial literacy among people with disabilities Health Access and Long Term Services Addresses the health disparities for women with disabilities that result from medical providers lack of knowledge about their responsibility to comply with the Americans with Disabilities Act Proyecto Visi n First national technical assistance center for Latinos with disabilities Established to provide services to employers service providers and jobseekers to address barrier to Latinos International Program Builds leadership in in disabled persons organizations in post con ict and developing countries to promote the full inclusion of people with disabilities into all aspects of society Technology Policy Provides training and technical assistant to make products and services accessible Disaster Preparedness and Response Programs to help American Red Cross staff and volunteers better serve people with disabilities during disasters Training and Public Education Conduct trainings on disability awareness accommodating employees with disabilities and increase workplace diversity Ever Widening Circle Celebrates disability culture and serves as a model for presenting entertainment that is accessible for all audiences
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