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UF / Psychology / LIN 2000 / What are the reasons parents don't make plans for the future care of t

What are the reasons parents don't make plans for the future care of t

What are the reasons parents don't make plans for the future care of t


School: University of Florida
Department: Psychology
Course: Impact of Disabilities
Professor: Penny cox
Term: Spring 2017
Cost: 50
Name: Exam 2 Review
Description: Completed Study Guide for Exam 2
Uploaded: 03/17/2018
6 Pages 7 Views 14 Unlocks

Exam 2 Review 

What are the reasons parents don't make plans for the future care of their children with disabilities?

Topics you should emphasize while studying for the exam are below.

Family Ecology­ All elements that make up the family unit     Siblings 

∙ Similarities 

1. Find positive and negative results

2. Grow toward acceptance of the disability

3. Experience a range of emotional responses

4. Siblings generally report positive family relationships

∙ Advantages

1. Developing a level of maturity that is greater than their same age  peers

2. Increased frequency of pro­social behaviors (helping others,  empathy, etc.)

3. Deep understanding of challenges of others and the advantages  most people take for granted

4. Increased tolerance for diversity 

5. Feeling of pride about accomplishments of disabled sibling 6. A deep sense of loyalty and caring towards sibling (defending  siblings)

Demonstrate greater family satisfaction, closeness and flexibility, is what?

We also discuss several other topics like What is Neural proliferation?

7. Greater Appreciation 

∙ Disadvantages

1. Limited parental time and attention

2. Stressful life at home 

3. Limits on family activities and outings

4. Guilt 

5. Embarrassment 

6. Teasing or bullying/ perceptions of peers 

7. Financial demands 

8. Rigid routines 

∙ Quality of life domains

1. Joint activities

2. Mutual understanding

3. Private time

4. Acceptance

5. Forbearance (perseverance)

6. Trust in well­being

7. Exchange experiences We also discuss several other topics like What is Hominid?

9. Social support

10. Dealing with the outside world

∙ Combined Skills Model 

o Access areas of weakness/need within the family

o Identify appropriate supports

∙ Roles of Older Siblings with disabilities (Serdity & Burgman, 2012) 1. Teacher

What are the advantages of siblings?

Don't forget about the age old question of French began to settlements were established in what year?

2. Protector

3. Carer

4. Friend

5. Playmate We also discuss several other topics like Why is it so important to distinguish exactly the boundary between the church and the state?

Parents with disabilities

∙ Common problems/issues 

o Misunderstandings

o Are not seen as sufficient parents

o Source of income to provide for family

o Not believe to be able to learn and make own decisions regarding  family life

o Factors associated with success

o Supports

Parents of Children with Disabilities 

∙ Special education, transition planning, and parent involvement

∙ Respite care: temporary institutional care of a dependent elderly, ill, or  handicapped person, providing relief for their usual caregivers.

∙ LESSON model for working with parents (Estrella, 2013) o Listen: nurses listen to parents talk about difficulties

o Educate: nurses educate families of autism

o Support: allowing families to manage as independently as possible o Structure: family routines set in place

o Observe: nurses asses parents’ ability to control challenging situations o Normalize: make autism become a manageable condition

This model of care is designed to empower the families of children with  autism by improving their coping strategies and allowing them to parent  independently  Don't forget about the age old question of How to Calculate components of the income statement?

∙ Health care decisions and problems

o Law mandating special education: As the nation's special education  law, IDEA provides rights and protections to children with disabilities and to their parents

o Such services must be provided to all qualifying children with  disabilities without regard to their particular ability to benefit from  special education and with no financial needs test. The act is heavily  parent/guardian oriented and requires states to maximize parental  involvement in educational decision making

∙ Transition planning

Sexual development and rights of people with disabilities ∙ Ashley treatment

o use of medical procedures to attenuate your daughter's growth and  inhibit the onset of puberty 

∙ Principle of equal consideration

o moral principle that states that one should both include all affected  interests when calculating the rightness of an action and weigh those  interests equally. 

∙ Teaching appropriate behavior

∙ "The Last Taboo" (concerns regarding liability)

o Laws intended to prevent sexual abuse can hinder pursuit of normal  relationships If you want to learn more check out Who was the father of rationalism?

o A 68­year­old faces rape charges stemming from allegations he had a  sexual relationship with an 18­year­old woman with intellectual  disabilities. He was charged simply because she had an intellectual  disability.  

∙ Characteristics of resilient families (from Knestrict & Kuchey (2009) and Welcome to Holland video)

1. Rhythmic: (rules, rituals, routines) 

o Rules: set statements that describe the appropriate 

behavior that is allowed in certain situations.

o Routine: steps that are involved in carrying out a 

certain action that provide structure

o Develop feelings of closeness and such bonding 

creates predictability

o Demonstrate greater family satisfaction, closeness and


2. Regenerative (cohesion, loyalty, trust, support) 

o family’s hardiness and coherence 

o how well a family develops coping strategies 

∙ Reasons parents don't make plans for the future care of their children with  disabilities (from Bibby, 2012)

1. Because they do not want their child to outlive them

2. Lack of confidence: 

o unsatisfactory standards of care

o risk of harm

o not being able to understand their needs

3. Poor relationships with professionals

o conflicting agendas between parent and professional

4. Mutual care and interdependency

5.  A lack of information

6.  Painful and difficult subject

7. Carer purpose and identity

o lifelong role as a carer

o life long

o dominant figure

8. Carer sense of duty

o moral obligation

o responsibility

9. Service­user fear of unknown

o (own abilities)

o Question ability to succeed in new environment

10. Carer concern regarding loss of control

o Continuation of care vs. health

11. Service­user unwilling to leave home

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