GENETICS & THE LAW
GENETICS & THE LAW PHG 523
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This 2 page Class Notes was uploaded by Samanta Aufderhar on Wednesday September 9, 2015. The Class Notes belongs to PHG 523 at University of Washington taught by Staff in Fall. Since its upload, it has received 22 views. For similar materials see /class/192364/phg-523-university-of-washington in Public Health Genetics at University of Washington.
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Date Created: 09/09/15
H 5 Study Questions for February 17 2004 Is there a constitutional light to medical privacy To what extend does the US Supreme Coult opinion in Whalen V Roe expand or limit privacy lights surrounding medical information What implications if any does this court opinion have for privacy lights surrounding genetic information What are the pros and cons of genetic plivacy legislation Do you foresee any practical problems with implementation and enforcement What impact might genetic plivacy laws have on clinical medicine research and the business of providing health care One of the goals of genetic plivacy legislation is to reduce the incidence of quotgeneticquot disclimination in insurance and employment How successful do you think this legislation will be in alleviating genetic disclimination What about disclimination based on non genetic information Is it fair to provide exceptional protections to individuals with an established genetic based health lisk as opposed to other types of health lisks In the aftermath of HIPAA how real is the threat of quotgenetic discliminationquot Safer v Pack argues that doctors have a duty to warn third parties of genetic dangers What are the legal social and policy problems that ow from this holding Pate v Threlkel takes the opposite view regarding the duty to warn What are the legal social and policy implications of this holding How would you address the question of third party lights to genetic information What would be your policy recommendation regarding duty to warn and why How does genetic plivacy legislation impact the duty to warn issue Genetics and the Law Study Questions for January 13 2004 What are the federal requirements that apply to researchers who use human subjects Who is the watchdog What problems and aws do you see as you read the regulations How could or should human subjects protections be interpreted in the context of genetic research Do you agree that the risks of social and psychological harm outweigh those of physical harm How can the individualistic approach of the Human Subjects regulations be adapted to serve the larger patient unpaitent group imperiled in genetics research Consider the recommendations of the National Bioethics Advisory Commission NBAC and the American Society of Human Genetics ASHG with respect to research done on coded or identi ed samples obtained in the past What logistic difficulties do the recommendations present Consider the hypothetical situations presented in the notes 2 3 and 5 on pages 103106 and be prepared to discuss The Human Genome Diversity Project HGDP seeks to identify genes that cause disease or offer protection from disease analyze evolution from a genetic approach and provide an increased pool of material for research and study What arguments do opponents to the HGPD make Are they valid How might their concerns be addressed One method of addressing group concerns has been the socalled community consent process that Morris Foster outlines see excerpt beginning 121 How might such a concept work in terms of informed consent Should community consent be a barrier to trump individual participation in a study Does this not violate individual rights of autonomy
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