IMPACT DISABILITIES EEX 2000
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This 8 page Class Notes was uploaded by Dameon Parisian on Friday September 18, 2015. The Class Notes belongs to EEX 2000 at University of Florida taught by Penny Cox in Fall. Since its upload, it has received 19 views. For similar materials see /class/206936/eex-2000-university-of-florida in Family and Child Sciences at University of Florida.
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Date Created: 09/18/15
EEX 2000 Impact of Disabilities Exam 1 History of Disabilities 0 Positives and negatives about the emergence of almshouses Positives society recognized that there were people with disabilities that needed help Negatives Segregated people w disabilities Dorothea Dix worked to establish separate facilities for people with mental disabilities and mental illness 0 O Eugenics the study of or belief in the possibility of improving the qualities of human species by discouraging reproduction of people with genetic defects negative eugenics and encouraging reproduction of people with desirable traits positive eugenics Coined by Sir Francis Galton improvement of the human population through selective breeding Themes found through history 7 fearrejection of unknown fear rejection of differences assumption that differences should be eliminated or fixed assumption of failure segregation disability grouped with poverty and criminality judgments based on normal standards Types of failure associated with disability Abandoned to Their Fate Aesthetic faiure of personal appearance inhuman Moral people w disabilities are inclined to social evils or moral burden iudgments of immorality Failure to act as society deems normal Economic people w disabilities cannot thrive economically Look at HW1 worksheet De nitions of and Models for Defining Disability 0 Disability is an umbrella term covering impairments activity limitations and O O participation restrictions An impairment is a problem in body function or structure physical An activitylimitation is a difficulty encountered by an individual in executing a task or action A participation restriction is a problem experienced by an individual in involvement in life situations Disability a physical or mental impairment that substantially limits one or more major life functions or activities 0 Models for Defining Disability Moral Medical Social See HW worksheet Moral Model F iVD has disability as punishment blame is placed on someone Medical Model Disability is within the person society wants to fix the problem SocialModel Society or environment is the root of problem due to social barriers Ableism Discrimination in favor of ablebodied people Society s negative attitudes about disability a child should do things the normal way 0 7 Principles of Ableism Guidelines Recognize the importance of diagnosis Consider family needs and desires Involve individuals with disabilities in decisions Encourage individuals to develop effective modes of expression Make integration into quotgeneralquot settings a priority Have high expectations Consider universal design accessible to all Overarching Issues 0 communication physical access discrimination Communication expressive and receptive Physical Access increase of mobility Discrimination PWD need to be integrated Cognitive Disabilities 0 Difficulty with mentally performed tasks 0 Cognitive disabilities is a general term that refers to conditions that cause individuals to have difficulty with mentally performed tasks 0 Functions affected and characteristics Memory Problemsolving Attention Use of language Ability to do math Comprehension of visual stimuli Intellectual Disabilities Mental Retardation Causes of Mental Retardation can occur 0 Prenatally Chromosomalgenetic maternal health and environmental o Perinatally Around birth time oxygen deprivation during birth etc o Postnatally lllness Injury or environmental 0 Definition AAIDD Significant limitations in both intellectualfunctioning and adaptive behavior IQ below 70 100 is average Present before age 18 0 Common conditions Learning disabilities Attention Deficit Disorder Dementia Intellectual Disabilities language limitations causes problems for communication 0 Levels of support Intermittent Mild ID provided as needed often during life transitions IQ 5069 Limited Moderate ID timelimited supports employment training or transition supports IQ 3549 Extensive Severe ID regular involvement in at least some environments not time limited IQ 2034 Profound Profound ID daily involvement in at least some environments not time limited IQ under 20 Physical and Health Disabilities 0 Types general characteristics Sensory deafness blindness Orthopedic affects muscles joints bone M affects strength vitality and alertness Illnesses or diseases that impede operation of various organs Can reduce physical strength and energy level and alter ability to attend andor remain alert 0 CP types orthopedic A condition that affects ability to move the body and coordinate muscles not a problem with the muscles themselves but rather control Spastic Stiff and difficult movement loss of control Athetoid Involuntary and uncontrolled movement extra movement Ataxic Disturbed sense of balance and depth perception Problems walking Mixed Forms Speech problems form CP is NOT Heredity progressive or curable EmotionalBehavioral Disorders 0 Generaldescription Patterns of behavior that negatively affect a person39s ability to function Can include Depression bipolar disorder and schizophrenia o Intemalized and externalized behaviors Autism Externalized Behaviors Acting out Characteristics Poor social relationships Difficulty coping with behavioral demands Inappropriater express needs and wants lnternalized Behaviors Social withdrawal doesn t directly affect others Examples anxiety social withdrawal mood disorders 0 Past beliefs about causes Leo Kanner formed the Foundation of Child Adolescent Psychiatry formed basis of the modern study of autism Coined term refrigerator mother theory that autism was caused by a lack of maternal warmth Bruno Bettelheim psychological environment causes autism Bernard Rimland founder of Autism Research Institute attacked Bettelheim s theory IDEA establishes autism as a separate category in special education The Individuals with Disabilities Education Act IDEA is a law ensuring services to children with disabilities throughout the nation 0 Characteristics Communication Social Interest Areas Characteristics include Autism is characterized by marked difficulties in behavior social interaction communication and sensory sensitivities Social Interaction Impairments Speech Language and Communication Impairments Stereotyped or Repetitive Behavior Physical and Medical issues 0 Autism Spectrum Disorders Autistic Disorder Characteristics Language is severely affected Engagement in repetitive movements Resistance to environmental change or changes in routine Unusual responses to sensory experiences Present from birth or early in the developmental period Social interactions severely impaired Asperger Syndrome significant difficulties in social interaction and nonverbal communication alongside restricted and repetitive patterns of behavior and interests Child Disintegrative Disorder Normal development for up to 5 years followed by loss of skills Receptive and expressive language social skills motor skills physical skills Rhett Syndrome Normal development followed by a loss of skills genetically transmitted effects girls Speech purposeful use of hands intellectual disability PPDNOS Pervasive Development Disorder Not otherwise specified Diagnosis used when autistic characteristics are present but one condition cannot be identified Review For Exam 2 Family perspectives Climate 0 refers to the general atmosphere in a home depends on how well a family works as a un1t refers to all the elements that make up the family unit including the number of parents siblings told of family members routine One or 2 families socioeconomic status education level extended family Ecology 0 events Family ecology that results in positive family climate allows family members to participate in expected routine activities 0 Family ecology can affect family climate 0 Siblings Similarities o 1 they nd positive and negative results 2 they grow towards acceptance of the disability 3 siblings experience a range of emotional responses 4 siblings generally report positive family relationships Quality of life domains 0 joint activities mutual understanding private time acceptance forbearance trust in well being exchange experiences social support dealing with the outside world Parents with disabilities we don t know how many parents have ID difficulties experienced by parents with ID 1 dif culty learning about child care 2 appear to be abusive or neglectful didn39t go to grocery storeno food for child didn39t do laundry child repeats clo thing 3 more likely than non disabled parents to lose custody at some point 4 not adequately represented during legal proceedings effects of parents with ID j ob options teaching children setting examples discipline child development lacllt adaptive behavior such as issues with budgeting and money forces children to take on adult roles early in life increase in parents with ID and decrease in forced sterelization dif culties faced by parents with ID poor communication language delays issues with expressing needs asking questions children more likely to develop ID children develop beyond parents understanding motives parents trust people when they shouldn39t lack of support network parents have fewer friends and contacts Combined Skills Model they assess areas of weaknessneed within the family and identify the appropriate forms of support READ ARTICLE SUMMARY Parents of children with disabilities Parents report having greater levels of stress Service organizations report frequent requests for respite care from parents Special education transition planning and parents 0 learning emotional and behavioral problems may result in additional stIessors in school Respite care 0 short term temporary care provided to people with disabilities in order that their families can take a break from the daily routine of care giving it enables families to take vacations or just a few hours of time off Health care decisions and problems 0 may have poor self esteem less likely to be social 0 who makes health and care related decisions for people whose disabilities impede their ability to make decisions for themselves what determines the level of impaiIment that prevents a person from making their own decisions what factors should be considered when making decisions for others Life expectancy for people with ID 0 life expectancy for people with ID has increased39 used to be 20 by the 1980s it has increased to 60 mortality rate is similar to peers until age 30 34 but after this age mortality rate increases dramatically Sexual development and rights of people with disabilities an integral part of the personality of everyone man woman and child it is a basic need and aspect of being human that cannot be separated from other aspects of life WHO de nition people with ID do pa1ticipate in sexual relationships but it depends on their level of functional social understanding our culture andjudicial system place restrictions on many sexual activities of people with ID should provide age appropriate sexual education for people with ID to protect them from abuse or from doing mistaken criminal activity Ashley treatment medical interventions on disabled people without their consent such as hysterectomies breast bud removal estrogen therapy etc very controversial and possibly illegal Principle of equal consideration 0 equal rights when considering sexual development for people with ID 0 arguments leading to denial of rights 1 restrictions are imposed to protect the individual with ID 2 their ability to have meaningful relationships is impaired 3 their ability to be a parent is questioned 4 there is a risk that their child will be born with a disability as well 5 the child has the right to have satisfactorily functioning parents Characteristics of resilient families from KnestrictampKuchey 2009 rules routines rituals criterion referenced reframing and reconstruction of reality and meaning ability for parents to reconstruct understanding of disability tenacity regeneraljvity and family hardiness advocate for child and family as a whole Socio economic status and access to services Reasons parents don39t make plans for the future care of their children with disabilities from Bibby 2012 1 lack of con dence in present and future provision 2 dif cult relationship with professionals 3 mutual care interdependency 4 lack of informaljon 5 painful dif cult subject 6 carer purpose and identity 7 carer sense of du 8 service user fear of unknown own abilities 9 carer concern regarding loss of control 10 service user unwilling to leave home Estrella39s 2013 LESSON model for working with parents model of support for families with newly diagnosed autism 1 listen nurses should listen to parents 2 educate nurses should educate families most bene cial intervention 3 support aims to enable families to manage as independently as possible 4 structure once parents know children39s needs a routine and appropriate structure can be created 5 observe nulses should observe families then discuss with them what they no ced and re ect on parents39 progress 6 normalize make home an quotaulisljcquot environment to ensure feelings of comfort and safety
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